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Night Out for Norah is happy to welcome Nick Lang to share his journey living with Cystic Fibrosis.
Norah, our honoree and inspiration is a vibrant beautiful 5 year-old with a strong personality and fearless spirit. Living with Cystic Fibrosis is a challenge, but it does not define her.
Norah's breathing treatments begin each morning and end each night with inhalant drugs that stimulate her airways. She complete 24 minutes of vest therapy twice a day to move mucus and help clear her lungs - something that average person's lung do naturally.
Throughout the day Norah takes 20 pills with her food to allow her pancreas to work correctly. Currently she is on a 2,000 calorie diet to increase her Body Mass Index (BMI). This is because people with CF who are heavier have better lung function. The goal is for her to reach a 50% BMI - which can be a struggle because she is getting so tall!
Norah loves to color, practice writing her letters and read books with her Daddy. She just completed her first year of preschool and made many new friends and a couple "boyfriends." Norah loves to ride bikes and play house with her sister Adeline. She loves to torment her dog Maggie. She is a dare-devil - She will climb, run, jump and try anything at least once. She is strong-willed, loud, and funny. Her big brown eyes are full of life and love.
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Join a powerful and exclusive army of love, dedicated to changing lives for 30,000 individuals diagnosed with Cystic Fibrosis (CF). The money raised supports CF patients through medication and lifesaving research which come directly from the foundation! Researchers are so close to developing treatments for the cure! We hope will consider joining our team and adopt a sponsorship.
E-mail us at email@example.com or contact Bridgette Hightower at 859-801-7150 for more information. Thank you in advance for supporting children and adults facing some of life's greatest challenges each day. We are fortunate to have you as a partner in our mission.
Tom Kaelin, FIC,
Catholic Order of Foresters
Gordon & Jennifer Rosenberry
Gingerbread House Day Care
Gergel Family Partners
Grubbs and Fortin Family
David & Tina Kaelin
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