Like Night Out for Norah on Facebook
Norah is a vibrant 9-year-old with a strong personality and fearless spirit. Living with Cystic Fibrosis is a challenge, but it does not define her. Her courage, humor, extremely loud voice, and enormous heart does instead.
Norah's treatments begin each morning with inhalant prescriptions that stimulate her airways. She completes 30 minutes of vest therapy every day to move mucus and help clear her lungs - something that average person's lung do naturally. She is mature beyond her years when it comes to medical treatments, because she has known no other option.
Thanks to generous donors and medical research, Norah recently began a new prescription Trikafta, and it has been going really well! Learn more about Trikafta.
Norah loves to be active. She especially loves playing soccer and basketball. During the summer, she can be found riding her skateboard or bike through the neighborhood. Indoors she loves to make silly videos with her friends, and play with fidget toys and lots and lots of slime.
Thank you for supporting Norah and the 29,999 others living with CF in the United States!
With only about 8 weeks of planning, the first Night out for Norah was held in 2013 in honor of Norah's first birthday. It was expected it to be a small event so it was held in a church parish hall. We were overwhelmed with the amount of people who came, and we surpassed our fundraising goal. $15,000 was raised that night and was all donated towards Cystic Fibrosis research for a cure. Since then, we have held 8 events raising over $223,000!
We will continue to fundraise to support research to find a cure for Norah and the 29,999 others living with Cystic Fibrosis in the United States.
While we are so thankful for the years of support at the large NOFN event, life has a way of telling you it is time to slow down. Norah's parents made the tough decision to take a break from the large fundraiser, as the behind-the-scenes work is year-round.
We hope to have smaller Night out for Norah events as we move forward. To start, we are excited to offer this family friendly, option to the NOFN crowd. What a great way to start the summer!
E-mail us at firstname.lastname@example.org or contact Marlayna Cooney at 859-512-5070 for more information. Thank you in advance for supporting children and adults facing some of life's greatest challenges each day. We are fortunate to have you as a partner in our mission.
Through the collaborative efforts of family, friends and our community, we will raise funds to improve the quality of life for those living with Cystic Fibrosis, honor those who have passed and do our part to reach an inevitable cure.
Cystic fibrosis will be locked away in the vaults of diseased cured through the efforts of people powered by love, scientific ingenuity and faith.
Night Out for Norah, Inc is a 501(c)(3) organization, and all monetary donations are tax deductible to the fullest extent allowed by tax laws.Please check with your financial advisor if you have more questions.
P: (859) 512-5070
Taylor Mill, Kentucky