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Norah is a vibrant almost 8-year-old with a strong personality and fearless spirit. Living with Cystic Fibrosis is a challenge, but it does not define her. Her courage, humor, extremely loud voice, and enormous heart does instead.
Norah's treatments begin each morning and end each night with inhalant drugs that stimulate her airways. She completes 30 minutes of vest therapy twice a day to move mucus and help clear her lungs - something that average person's lung do naturally. She is mature beyond her years when it comes to medical treatments, because she has known no other option.
Throughout the day Norah takes around 30 pills with her food to allow her pancreas to work correctly. Currently she has a goal to hit 2,500 calories a day to increase her Body Mass Index (BMI). Her meals are usually packed with extra calories through things like extra butter, cheese or strawberry syrup in her milk. This is because people with CF who are heavier have better lung function.
Norah loves to be active. She especially loves to ride her scooter up and down her street saying hi to all her neighbors. She plays soccer and basketball and loves to swim. She enjoys playing house, Barbie's and Minecraft with her big sister Adeline. Her favorite animal is a wolf, and she has started a collection of wolf stuffed animals that she sleeps with every night.
Norah loves Kindergarten. Her teacher is a fantastic support—and has helped her first year go incredibly smooth. She has made so many new friends. She is proud that she is learning to read, and loves that she can run laps in gym class faster than most of the boys!
Night Out for Norah
With only about 8 weeks of planning, the first Night out for Norah was held in 2013 in honor of Norah's first birthday. It was expected it to be a small event so it was held in a church parish hall.We were overwhelmed with the amount of people who came, and we surpassed our fundraising goal. $15,000 was raised that night and was all donated towards Cystic Fibrosis research for a cure.
The event has grown, and we now rent receptions halls to comfortably hold our 250+ guests. We hope you and your friends consider joining us this year for a night of live music, silent auctions, and casual fun.
Our main goal is to spread awareness. We want a cure for Norah and the 29,999 others living with Cystic Fibrosis in the United States. The median life expectancy today is 41 years-that is not good enough!
Beer, wine and heavy appetizers are included in your admission price. Please Note: If you pay online, your name will be on a list. No ticket will be mailed or emailed.
"Without God there would be no science, without science there would be no hope."
#Norahstrong
