With only about 8 weeks of planning, the first Night out for Norah was held in 2013 in honor of Norah's first birthday. It was expected it to be a small event so it was held in a church parish hall. $15,000 was raised that night and was all donated to the Cystic Fibrosis Foundation. The event has since grew and is now held in receptions halls. Our main goal with Night out for Norah is to spread awareness about Cystic Fibrosis and to raise funds to help find a cure for Norah and the 29,999 others living with Cystic Fibrosis in the United States. We believe we will see a cure in Norah's lifetime!
Norah is a vibrant 5-year-old with a strong personality and fearless spirit. Living with Cystic Fibrosis is a challenge, but it does not define her. Her courage, humor, extremely loud voice, and enormous heart does instead.
Norah's treatments begin each morning and end each night with inhalant drugs that stimulate her airways. She completes 30 minutes of vest therapy twice a day to move mucus and help clear her lungs - something that average person's lung do naturally. She is mature beyond her years when it comes to medical treatments, because she has known no other option.
Throughout the day Norah takes around 26 pills with her food to allow her pancreas to work correctly. Currently she is on a 2,500 calorie diet to increase her Body Mass Index (BMI). Her meals are usually packed with extra calories through things like extra butter, cheese or strawberry syrup in her milk. This is because people with CF who are heavier have better lung function. The goal is for her to reach a 50% BMI - which can be a struggle because she is getting so tall so quickly.
Norah loves to be active. She especially loves to ride her scooter, play soccer, and swim. She enjoys playing dolls and Minecraft with her big sister Adeline. Her favorite animal is a wolf, and she has started a collection of wolf stuffed animals that she sleeps with every night. She goes to Pre-K 4 days a week where she is studying her alphabet and numbers. Norah is also very proud that she has already lost four teeth and is saving her tooth fairy money.
CLICK HERE to download more information about becoming a sponsor.
Join a powerful and exclusive army of love, dedicated to changing lives for 30,000 individuals diagnosed with Cystic Fibrosis (CF). The money raised supports CF patients through medication and lifesaving research which come directly from the foundation! Researchers are so close to developing treatments for the cure! We hope will consider joining our team and adopt a sponsorship.
E-mail us at firstname.lastname@example.org or contact Bridgette Hightower at 859-801-7150 for more information. Thank you in advance for supporting children and adults facing some of life's greatest challenges each day. We are fortunate to have you as a partner in our mission.
Tom Kaelin, FIC,
Catholic Order of Foresters
Gordon & Jennifer Rosenberry
Gingerbread House Day Care
Gergel Family Partners
Grubbs and Fortin Family
David & Tina Kaelin
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